Welcome Friends!
Sydney R.
(Sister to Madison R)
Minnesota
Biography
Sydney's big sister Madi had Dilated Cardiomyopathy, a condition in
which the heart becomes enlarged and can no longer function correctly. It was
thought that Madi's DCM was not genetic, and she ended up requiring a heart
transplant in '09 at the age of 3.5.
Madi's doctors suggested yearly screening echos for her sister, Sydney. It was
on one of these screening echos that Sydney was found to have the same disease.
October 14, 2011 we started Sydney on 5 different heart medications. We will
have to go to the Mayo Clinic every two weeks or so for the foreseeable future.
Sydney will have to have frequent blood draws, echocardiograms,
electrocardiograms and chest x-rays, as well as genetic testing.
Doctors are optimistic that we will hopefully not need to go to transplant with
Sydney, but she will still need extensive medical monitoring, care, and
medication for the rest of her life.
When you sign up to stitch for Love Quilts you will get a confirmation of your sign up. If your pattern is a duplicate you will be asked to pick another pattern.
We encourage you to join the LoveQuiltsUSA Yahoo group to check the pattern listing for duplications yourself before you sign up.
The lists of patterns already being stitched are posted on the database. LoveQuiltsUSA is an open group so you can sign up easily and view the patterns right away. Please follow this link to sign into the Love Quilts Yahoo Group...
Once there click on the link "database" on the right to view the children and their patterns. Once you find a pattern that you want to stitch and have confirmed it is not already being stitched you may return to the sign up form, fill it in and submit it. If you have any questions about the yahoo group please email Cyberfogie@aol.com, Vicki, for further instructions (yahoo groups email only!) Thanks!
Birth Date - March 24, 2009
Main Diagnosis - Dilated Cardiomyopathy
THEME: EMS Babies with Purple fabric
THANK YOU
The quilts are beautiful! The girls just love them, and they love to show them off. They have brought great comfort to the girls, especially since they have been sick. I cannot thank you enough for what you do. It's priceless.
Squares donated by Operation Teddy Bear.
