Welcome Friends!
Kaleb L.
Oregon
Birth Date - August 01, 2010
Main Diagnosis - Critical Aortic Stenosis, Severe Valve Regurgitation and a
rare disorder called Endocardial Fibroelastosis (EFE)
THEME: Cars
Biography
Baby Kaleb was born on August 1, 2010. 16 hours after he was born a
nurse tested the oxygen level on his hands and feet and found only his body was
getting oxygen . They quickly realized he was in heart failure and near death.
He had Congenital Heart Disease- Critical Aortic Stenosis and
Endofibroelastosis. His aortic valve had only one leaf instead of three and it
was closed. The right side of his heart had inflated to compensate. Less than
10% of his heart was working. He was sent by ambulance to RVMC where they
readied him for a flight to Portland, he was not expected to live through the
flight. Doctor's at Legecy Emanuel Childrens Hospital performed a life saving
surgery called an angioplasy, to open his deformed valve. The surgery was
successful but caused severe leaking around the valve. They found Kaleb's heart
muscle had stretched and scared on the outside of his heart and has a rare
condition called Endofibroelastosis. Last October he had a second surgery
which was unseccessful to fix the valve and caused more leaking. In Nov. Kaleb
was admitted to Doenbecker to be put on an experimental heart medicine. Now
Kaleb is in isolation at home and takes four heart medications twice a day. He
is regularly being monitored by his doctors and is blowing them away by doing
things they said he couldn't do. After his second surgery he was given 6-8
months to live and they said he wouldn't grow and his heart would give out.
Today he looks like any other baby, lots of prayer has gotten him this far. God
has his hand on Kaleb's heart.
He will need a lifetime of surgeries but for now, we are letting him get bigger
and stronger until they say he can't wait anymore.
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We encourage you to join the LoveQuiltsUSA Yahoo group to check the pattern listing for duplications yourself before you sign up.
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Once there click on the link "database" on the right to view the children and their patterns. Once you find a pattern that you want to stitch and have confirmed it is not already being stitched you may return to the sign up form, fill it in and submit it. If you have any questions about the yahoo group please email Cyberfogie@aol.com, Vicki, for further instructions (yahoo groups email only!) Thanks!
