Welcome Friends!
Jacob W.
Christopher P's cousin
Mississippi
Biography
Jacob started having febrile seizures at 11 months. They told me he
has viruses. He never wanted to walk when he finally started. He always hurt. He
was diagnosed with jra, kidney stones, myopathy, neutropenia all before his cousin
was born with a heart defect and was sent to a geneticist.
Then we finally got our answer Barth syndrome . He does not have the heart
defect, therefore does not qualify for a lot of programs.
The jra and myopathy keep Jacob from being active. He has very low muscle tone . He cannot play sports. Jacob is currently medication free b/c he is in the honeymoon phase. We just watch him and go day to day for his neutropenia.
When you sign up to stitch for Love Quilts you will get a confirmation of your sign up. If your pattern is a duplicate you will be asked to pick another pattern.
We encourage you to join the LoveQuiltsUSA Yahoo group to check the pattern listing for duplications yourself before you sign up.
The lists of patterns already being stitched are posted on the database. LoveQuiltsUSA is an open group so you can sign up easily and view the patterns right away. Please follow this link to sign into the Love Quilts Yahoo Group...
Once there click on the link "database" on the right to view the children and their patterns. Once you find a pattern that you want to stitch and have confirmed it is not already being stitched you may return to the sign up form, fill it in and submit it. If you have any questions about the yahoo group please email Cyberfogie@aol.com, Vicki, for further instructions (yahoo groups email only!) Thanks!
Birth Date - August 22, 2000
Main Diagnosis - Barth syndrome
THEME: Ducks
Squares donated by Crossstitch Addicts
