Welcome Friends!
Emma R.
Oklahoma
Biography
We are often asked, "What is wrong with Emma?" We tend to think
nothing is wrong, she is who God made her, using the word wrong means "by
mistake" and Emma is no mistake. But I do understand people are curious to why she is different. So here is the story--
Emma was born Oct 16, 2004 about 10 seconds before her twin sister. I found out
at 8 weeks I was having twins. They thought they were conjoined but they ended
up being something called monoamniotic monochorionic twins. That is a fancy word
for saying their was no membrane seperating them and that they shared a
placenta. It was a high risk pregnancy, because it put them at risk for cord
entanglement and something called Twin to Twin Transfusion. I went into preterm
labor around 25 weeks but thank God the girls made it to 31 weeks. Emma was 3lbs
6 oz and Ella 3 lbs even. They were both 15 inches long. Emma suffered a lack
of oxygen due to cord entanglement and suffered brain damage. She has since been
diagonosed with cerebral palsy. She has no swallow or gag reflex. She can not
roll over, sit up or do things a "normal" baby can do,let alone a child her own
age. She was given a trachestomy in her neck to help her breathe and a feeding tube to help her eat on Dec 13, 2004. She came home for the very first time about a week after that. She kept having problems breathing, she would just forget to breathe sometimes so on June 8,
2005 she was put on a ventilator and sent home July 5, 2005. That has made a
world of difference. She is in no pain. She isn't stupid. The part of her brain that controls
intellect is just fine. The part of her brain that controls muscles is what is
damaged, which is why she can't talk or move well. They are not sure why she
forgets to breath sometimes, since the part of her brain that controls that
looks fine on scans. Thank God we have our vent, so she is able to stay home and
happy and she is able to enjoy life.
When you sign up to stitch for Love Quilts you will get a confirmation of your sign up. If your pattern is a duplicate you will be asked to pick another pattern.
We encourage you to join the LoveQuiltsUSA Yahoo group to check the pattern listing for duplications yourself before you sign up.
The lists of patterns already being stitched are posted on the database. LoveQuiltsUSA is an open group so you can sign up easily and view the patterns right away. Please follow this link to sign into the Love Quilts Yahoo Group...
Once there click on the link "database" on the right to view the children and their patterns. Once you find a pattern that you want to stitch and have confirmed it is not already being stitched you may return to the sign up form, fill it in and submit it. If you have any questions about the yahoo group please email Cyberfogie@aol.com, Vicki, for further instructions (yahoo groups email only!) Thanks!
Birth Date - October 16 2004
Main Diagnosis - Cerebral Palsy
THEME:Dreamsickles
